👶

JM Punarvika Shri

8 months old · Kurnool, AP

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👨

JM Suresh Kumar

Father & Campaigner

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📸 Punarvika's Journey

🏥 Medical Diagnosis

Diagnosis: SMA Type 1 (Spinal Muscular Atrophy)
Genetic Finding: SMN1 exon 7 and 8 homozygous deletion
SMN2 Copies: 2 copies
Symptoms: No neck control, doesn't reach for objects, hypotonia, hyporeflexia
Weight: 5.56 kg (lost 500g in 6 months)
Current Treatment: Risdiplam, Physiotherapy
Recommended: Gene Therapy (Zolgensma)
Gene Therapy Cost: USD 125,000 (approx ₹1.05 Cr)

Source: Rainbow Children's Hospital, MedGenome Labs & Malaysia Health Association

📋 Medical Certificates

8
Months
37.6K
Donors
₹95L
Raised
0.59%
Progress
₹95,00,000 raised ₹16,00,00,000 goal

💔 A Father's Plea

When Punarvika was just 5 months old, we noticed something was wrong. She was losing weight, struggling to breathe, and her tiny stomach was growing bigger. The doctors diagnosed SMA Type 1 - Spinal Muscular Atrophy.

SMA is a rare genetic disorder that slowly takes away a child's ability to eat, breathe, and move freely. Since June 2025, Punarvika has been fighting this battle. She cannot move her legs, has no neck control, and needs constant care.

💊

Gene Therapy: Zolgensma

FDA-approved treatment that can CURE SMA

USD 125,000

(approx ₹1.05 Crore for the drug alone)

We cannot manage the extremely high cost of this treatment alone. Our daughter needs your help to have a normal life.

📅 February 2, 2026 · Latest Update

"Punarvika Shri is currently undergoing ongoing treatment with regular physiotherapy and medication (Risdiplam). Her recovery requires continuous care and supervision. Your continued prayers and generous support mean so much."

— JM Suresh Kumar

💬 Donor Comments

SK
Sitaram K 6 hours ago

God bless you Punarvika....

DR
Deepika R 14 days ago

Done from my side. God bless her!

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